**** please note I did write this in two segments
I should disclaimer that mid way through writing this, I may fall asleep or may be in too much pain and have to stop. I am currently laying on the couch in the basement of my best friends Rachel's house, while I listen to laughter and conversation upstairs. My mom, dad, Rachel, her husband and friend from college Erin Zimmerman are making salsa and margaritas (tacos too) with my new VitaMix upstairs.
Listening to the sound above me, gives me both of joy and sadness. I wish I too could be partaking in tequila and contributing to dinner preparation but alas I am confined to the couch and my numbing medication. The VitaMix was an early birthday gift for me from my parents. I decided to eat vegan throughout my healing process. A mostly plant based diet has proven to aid in the recovery process for cancer patients. By avoiding the additives and hormones in dairy/ meat which are considered inflammatory foods and ingesting more alkaline rich ingredients, I am hoping the sooner I bounce back.
So while they are enjoying Jose Cuervo upstairs and preparing dinner, I am going to attempt to recap my last twenty four hours in the hospital, including my surgery:
Wednesday morning, November 5, I woke up early to drink my last few cups of coffee (was told no more liquid after 9:30 am), I read sweet notes from dear friends and my devotional while laying in my bed. I started reading the countless messages from all of you and cried happy tears. I desperately pleaded for peace and joy for the day, to not be afraid but rather walk in confidence for what was about to take place.
Around 8:30 am I picked up my dad at my parents hotel, so we could take one last long walk at my favorite place, Washington Park. We walked for an hour, (2.8 mile loop) talked and spent time together. I was so grateful for this walk and the crisp fall air, as the sun waking up the day.
Following our walk I went home to get ready. My last shower was one I will never forget. With blue marker circling both breasts and marking where the incisions would be, I just stared in the mirror. One last time looking this way.... I thought to myself. I showered and tears streamed. Leaning against the shower wall, I thought..... this is it. The last time with this chest. I gently dried off and got dressed. I packed up my final things, put on comfortable clothes (although it didn't matter since they were going to put me in scrubs anyway). No makeup, no lotions, no deodorant.... no nothing. Meagan Day came by to help load all of our things to deliver them to my friends Rachel's house where I will be doing recovery for a few weeks, which was such a blessing to not have to transport it ourselves.
My dad drove to the hospital and while driving we continued to read out loud so many of your messages of encouragement. We were so grateful for the outpour. Upon arriving we learned that I was a half hour late (communication mix up by the hospital). So after checking in, receiving my wristband and all, I proceeded to the Radiology imaging department first. This allowed them to identify the lymph nodes they would take during surgery. They injected dye into my left breast where I then massaged the dye into my lymph nodes. The radiologist took a bunch of pictures under a giant machine thingy and then I was all finished up. (Lionel Richie was on Pandora station, which was nice background music).
Once I completed this step I was then admitted for surgery. Upon leaving my parents I tried not to look back at them. I didn't want them to see me cry. So I simply kept my head down said I will see you in a bit. I could tell they were having a difficult time and I was afraid if they saw me cry it would make matters worse. The nurse was very nice and asked me how I was. As routine (protocol) she asked what surgery they were performing. She then asked if this was a proactive mastectomy procedure and I said no that I was diagnosed breast cancer. She paused for a few moments and said "Wow you're so young." I said "Yes mam I am". She explained that she had a daughter close to my age and she said "goodness your poor parents and I started to cry, I said I know..... it's terrible".
She left me alone in my room so I could change into my gown (it is hard to tie that thing without flashing the world), panty hose sort of things (to prevent blood clots) and socks. The entire time I was in the surgery preparatory room I silently prayed. Prayed for peace. It seems every time I am in a room alone my emotions creep up and all I want to do is crawl in a ball tightly and cry. I knew I was seconds from a breakdown. It is not that I did not want to cry (maybe a bit of pride) but that I really wanted to be confident in the whole process. I wanted God's peace and his joy to be the story not my fear. So I strived to continue trusting I made the right choice, the choice for healing and that no matter what he was there in the midst of it all.
My IV was inserted quickly after and my parents got to come back. As this point I was in surgery ready mode. Blue hat and all. I called my sister and she wished me luck. I began to cry and said I would talk to her soon. I tried not look at my mom and dad afraid my tears would start flowing. There was no turning back at this point. My breast surgeon came in to ask how I was doing and said we would go back, in about twenty minutes.
Time seemed to fly by.....While in pre-op they began pumping me with medication for nausea and pain. The last drug they gave me caused a temporary form of amnesia. The anaesthesiologist advised that I would be functioning, talking normally etc. but I would not remember anything. And that is exactly what happened. They wheeled me out of my room, tears down my cheeks as I said goodbye to my mom and dad. The last thing I remember is being rolled in to the emergency room....... This was at 1:30 pm.
I woke up around 6:00 pm and found myself in post-opp. I barely remember this room except for asking the ever so important question, "Were my lymph nodes clear?" and the nurse responded "Yes". Still in a daze and my eyes closed I could feel as though a weight had been lifted off my shoulders and tears found their way to the corners of my eyes. Tears of relief, of joy and of immense gratitude.
Quickly after, my Mom and Dad came back, followed by Samantha (my cousins wife) and Meagan Day. I have never been so relieved to be finished and to squeeze their hands. The power of human touch is a beautiful thing. Seeing and holding their hands never felt better.
For now I am going to take a break from writing. I must get some sleep again. I am struggling to get comfortable and it is 3:30 am Denver time. However I am happy to hear both of my parents sleeping in other rooms.
I will consider this post, Chapter 1 of Surgery. More details, more thoughts and more emotions surrounding the day to follow. I should note that the preliminary pathology reports that my lymph nodes are clear. I will know officially in 10-15 days.
Warmest Kristina
Saturday, November 8, 2014
Tuesday, November 4, 2014
Inviting People In
Inviting people to be apart of your story and your pain is something that reaps the most beautiful out pour of blessings. Rather than closing the door and attempting to battle this alone, by inviting people to be apart of this story and this journey, I have a stockpile of moments that I will carry with me for the rest of my life....
I have had multiple people speak of my diagnosis with a sense of urgency and excitement. As though they know something I do not. As though they believe something is being done in the midst of all this and they are waiting with urgency to see it come to light.
I love believing that.
Rather than spend my time in anger or bitterness approaching this diagnosis, I am choosing to believe that something good will be on the other side....... It sure makes the waiting and the days easier to bare.
I have spoken of my stubbornness nature before and my independence. Up to today I was the girl out there conquering the world, my fears and seeking to climb the next mountain. Whether it was backpacking alone through Central America, attending yoga school, quitting my job and heading south, signing up for races, or spending money on once and a lifetime opportunities..... I am a seeker, a doer and I wanted to leave no stone upturned in this thing called life....... Cancer has not taken that away from me but rather refined it. Cancer has refined my heart to know that in my desperate attempts to always be doing, that there is great beauty in the stillness. In the gentle whispers that life has to offer. Cancer in so many ways has been a gentle whisper......
Cancer has gently found way into the depths of my heart. Into places I never even knew existed. This gentle whisper has allowed others to lean in closer to me. To listen, to love and to show up. I am honored that I get the chance to be the recipient of that.
I truly believe it is a privilege to have others walk in a journey with you. For others to cry with and for me. For others to pray for me. For others to show up on my parents doorstep so I could simply hear the words, We love you..... We are here with you. Sunday evening I sat on the airplane, with tears down my cheeks reading through the many cards I received while I was home in Kentucky. I cried reliving the sweet moments spent with my family and the laughter with friends of past..... May everyone get the chance to be held up by others in their lifetime. Perhaps not through a cancer diagnosis but in so many ways I hope you too, get to feel the love that is others showing up when you need it most.
Someone described me on Sunday as "glowing".
What a beautiful compliment that is. I truly believe that if I really do appear to be glowing ..... I am a glowing reflection of the outpour of love that has come from all of you. You all allow me to be the one who is smiling, laughing and knowing full well the joy that is cancer.
This past weekend was just that..... My work surprise party was that (I had not clue), complete with cake, and shots of bourbon and frozen meals for me to take and last evening having a bonfire, and food with those whom I consider my Colorado family...... it was. It all has been great joy.
But I am ready. Ready for this to begin. To say goodbye to work for a while, pack my hospital bag, and share my last meal with my parents tonight before tomorrow's big day.
Again my words seem so inadequate to express my appreciation to everyone that I have seen in the last few days, for the tears you express to me and for all of those sending their love far away.
Hope you find great joy today...... from Colorado. Love Kristina.
Below are some pictures from the weekend.
Louisville vs. Florida State Game....
I have had multiple people speak of my diagnosis with a sense of urgency and excitement. As though they know something I do not. As though they believe something is being done in the midst of all this and they are waiting with urgency to see it come to light.
I love believing that.
Rather than spend my time in anger or bitterness approaching this diagnosis, I am choosing to believe that something good will be on the other side....... It sure makes the waiting and the days easier to bare.
I have spoken of my stubbornness nature before and my independence. Up to today I was the girl out there conquering the world, my fears and seeking to climb the next mountain. Whether it was backpacking alone through Central America, attending yoga school, quitting my job and heading south, signing up for races, or spending money on once and a lifetime opportunities..... I am a seeker, a doer and I wanted to leave no stone upturned in this thing called life....... Cancer has not taken that away from me but rather refined it. Cancer has refined my heart to know that in my desperate attempts to always be doing, that there is great beauty in the stillness. In the gentle whispers that life has to offer. Cancer in so many ways has been a gentle whisper......
Cancer has gently found way into the depths of my heart. Into places I never even knew existed. This gentle whisper has allowed others to lean in closer to me. To listen, to love and to show up. I am honored that I get the chance to be the recipient of that.
I truly believe it is a privilege to have others walk in a journey with you. For others to cry with and for me. For others to pray for me. For others to show up on my parents doorstep so I could simply hear the words, We love you..... We are here with you. Sunday evening I sat on the airplane, with tears down my cheeks reading through the many cards I received while I was home in Kentucky. I cried reliving the sweet moments spent with my family and the laughter with friends of past..... May everyone get the chance to be held up by others in their lifetime. Perhaps not through a cancer diagnosis but in so many ways I hope you too, get to feel the love that is others showing up when you need it most.
Someone described me on Sunday as "glowing".
What a beautiful compliment that is. I truly believe that if I really do appear to be glowing ..... I am a glowing reflection of the outpour of love that has come from all of you. You all allow me to be the one who is smiling, laughing and knowing full well the joy that is cancer.
This past weekend was just that..... My work surprise party was that (I had not clue), complete with cake, and shots of bourbon and frozen meals for me to take and last evening having a bonfire, and food with those whom I consider my Colorado family...... it was. It all has been great joy.
But I am ready. Ready for this to begin. To say goodbye to work for a while, pack my hospital bag, and share my last meal with my parents tonight before tomorrow's big day.
Again my words seem so inadequate to express my appreciation to everyone that I have seen in the last few days, for the tears you express to me and for all of those sending their love far away.
Hope you find great joy today...... from Colorado. Love Kristina.
Below are some pictures from the weekend.
Louisville vs. Florida State Game....
Evansville, Indiana Halloween Party with Family
Spending time with Brittany Anderson, Christie Lee, Sarah Shannon and Susan Stewart.
Louisville Open House at my parents.
Monday, October 27, 2014
Cancer Tips and Heading Home
I am reading this really fantastic book about cancer, called "Crazy Sexy Cancer Tips". I too was surprised by the title of the book. The books unconventional way of offering advice has been tremendously helpful. Basically a guide to "Oh sh** I have cancer. What do I do now?" (written by a woman diagnosed with a rare form of cancer prior to marriage and children).
I have learned that I am in a very small group of women who are single, not married, and do not have children when diagnosed with Breast Cancer. So although some information others have offered is helpful, I have learned to trust my doctors, pray all the time and trust my own intuition to attack my cancer. Unfortunately cancer is not black and white. Given my BRCA 2 positive testing, the chances of this beast of a disease coming back still exist, so I am determined to do everything in my power to see to it that it does not.
One of the tips the book gives is to get organized. The author advises the reader to make sure you keep copies of everything, log your medication, and keep track of appointments. Below are some pictures of my cancer binder. I am protesting the color pink at the moment so I bought a kelly green binder instead. Almost three weeks ago now, I sat down on the floor in my room, played music, and got myself organized. I called it my, "cancer craft". This has helped me keep things together. As you can see I was given a LOT of information and keeping track is a small way of staying afloat. I have four doctors to stay in touch with, a Breast Surgeon (Moore), an Oncologist (Basche), a plastic surgeon (Williams) and a fertility specialist (Ambler). Having all of my information together in one place is tremendously helpful.
A large part of this journey is as well staying financially with it.... (at least aware of the financial piece). I quickly made myself aware of my coverage and deductibles so I am prepared for the financial obligations to me. Although the financial piece is overwhelming...... being in denial about how much it will cost for me to beat cancer doesn't help me beat cancer at all.
In addition to getting organized I did a couple things for myself. I got a massage :) and my roommate helped me purchase a yoga class package. Both of these things have made small dents in reducing the amount of stress I am handling. (stress can be a trigger of growing cancer, but try telling someone who has cancer not to worry..... if only it were so easy). On top of my full time job working at a private equity firm, I seem to go to the doctor at least twice a week since this happened, come in later to work and work even later. I am exhausted.
But more than handling the logistical pieces of cancer and preparing to take a month or more leave from work....... I have tried to squeeze every last ounce of goodness out of the past few weeks. From carving pumpkins, taking my road bike out for 20+ mile rides, meeting friends for runs, dinners and sneaking away to the mountains to see the fall colors.
I am grateful for this time to process and prepare......I mentioned I will be heading back to Louisville this Thursday for the weekend. I would love to see each and every one of you if I can.....
Sunday November 2, 2014, my parents will be hosting an open house at their house from 1:00- 3:00 pm. Address: 1506 Bella Arbor Way, Louisville KY 40245
Please spread the word and stop by to say hello and to give me a hug. (And to cheer on the Broncos of course) I would be so honored. Please feel free to reach out to me if you have specific questions, old friends, new friends, Adventure Christian Church folks and Polo Fields families who have been cheering me on for so long I would love to see you all.
For my Colorado friends and family, please come stop by my house on Monday night in Washington Park around 6:30 pm. I intend to drink good bourbon, give lots of hugs and be surrounded by all of my favorite people. Please come by and hang out.
Monday November 3, 2014: 6:30 pm- 9:00 pm at 1152 South Elizabeth Street, Denver CO 80210
Last piece of business, I wanted to make you aware of a place that dear friends in Colorado have created to share updates, share ways you can help me and things that are taking place. I intend to keep writing on my blog but my friends will be coordinating some specific ways to assist me, both financially, spiritually and practically. Please visit this page for information on donating, sending mail, food, or simply hearing how I am doing.
Here is the link here
Every single comment or message is read not just once but multiple times. So thank you. They remind me that I am not alone and I am so grateful.
Hope all of you have a really great Tuesday. The sun is shining here, I took a 6 am yoga class and I am already on my second cup of coffee for the day. So take that cancer, worries and fear :)
I have learned that I am in a very small group of women who are single, not married, and do not have children when diagnosed with Breast Cancer. So although some information others have offered is helpful, I have learned to trust my doctors, pray all the time and trust my own intuition to attack my cancer. Unfortunately cancer is not black and white. Given my BRCA 2 positive testing, the chances of this beast of a disease coming back still exist, so I am determined to do everything in my power to see to it that it does not.
One of the tips the book gives is to get organized. The author advises the reader to make sure you keep copies of everything, log your medication, and keep track of appointments. Below are some pictures of my cancer binder. I am protesting the color pink at the moment so I bought a kelly green binder instead. Almost three weeks ago now, I sat down on the floor in my room, played music, and got myself organized. I called it my, "cancer craft". This has helped me keep things together. As you can see I was given a LOT of information and keeping track is a small way of staying afloat. I have four doctors to stay in touch with, a Breast Surgeon (Moore), an Oncologist (Basche), a plastic surgeon (Williams) and a fertility specialist (Ambler). Having all of my information together in one place is tremendously helpful.
A large part of this journey is as well staying financially with it.... (at least aware of the financial piece). I quickly made myself aware of my coverage and deductibles so I am prepared for the financial obligations to me. Although the financial piece is overwhelming...... being in denial about how much it will cost for me to beat cancer doesn't help me beat cancer at all.
In addition to getting organized I did a couple things for myself. I got a massage :) and my roommate helped me purchase a yoga class package. Both of these things have made small dents in reducing the amount of stress I am handling. (stress can be a trigger of growing cancer, but try telling someone who has cancer not to worry..... if only it were so easy). On top of my full time job working at a private equity firm, I seem to go to the doctor at least twice a week since this happened, come in later to work and work even later. I am exhausted.
But more than handling the logistical pieces of cancer and preparing to take a month or more leave from work....... I have tried to squeeze every last ounce of goodness out of the past few weeks. From carving pumpkins, taking my road bike out for 20+ mile rides, meeting friends for runs, dinners and sneaking away to the mountains to see the fall colors.
I am grateful for this time to process and prepare......I mentioned I will be heading back to Louisville this Thursday for the weekend. I would love to see each and every one of you if I can.....
Sunday November 2, 2014, my parents will be hosting an open house at their house from 1:00- 3:00 pm. Address: 1506 Bella Arbor Way, Louisville KY 40245
Please spread the word and stop by to say hello and to give me a hug. (And to cheer on the Broncos of course) I would be so honored. Please feel free to reach out to me if you have specific questions, old friends, new friends, Adventure Christian Church folks and Polo Fields families who have been cheering me on for so long I would love to see you all.
For my Colorado friends and family, please come stop by my house on Monday night in Washington Park around 6:30 pm. I intend to drink good bourbon, give lots of hugs and be surrounded by all of my favorite people. Please come by and hang out.
Monday November 3, 2014: 6:30 pm- 9:00 pm at 1152 South Elizabeth Street, Denver CO 80210
Last piece of business, I wanted to make you aware of a place that dear friends in Colorado have created to share updates, share ways you can help me and things that are taking place. I intend to keep writing on my blog but my friends will be coordinating some specific ways to assist me, both financially, spiritually and practically. Please visit this page for information on donating, sending mail, food, or simply hearing how I am doing.
Here is the link here
Every single comment or message is read not just once but multiple times. So thank you. They remind me that I am not alone and I am so grateful.
Hope all of you have a really great Tuesday. The sun is shining here, I took a 6 am yoga class and I am already on my second cup of coffee for the day. So take that cancer, worries and fear :)
Cutting my hair and Nesting
I often relive the moment I was told I have cancer. Where I was downtown Denver.... the cross streets. Gradually coming to my knees and eventually finding myself leaned up against an office building as the doctor told me the devastating news. Tears just streamed and my heart ached. In so many ways that moment, those emotions, that fear come rushing back every day since.
Thursday afternoon, with my roommate and Samantha (my cousins wife) I went to the plastic surgeon. We went through my reconstruction procedure and I signed all of my paperwork. The nurse explained in detail how I will have four drains put in to help drain out the fluid collecting due to surgery. Two drains for each breast. The drains will have to be emptied and the amount of fluid measured each day (multiple times). I will have the drains as long as fluid is collecting. Estimated (3 weeks). In addition to the drains I will be given what they call a pain pump. Until the Sunday following surgery, this will secrete numbing medication into my chest to help reduce the pain. Once it is emptied I will pull the cords out myself. I think it may have been at this time, that the nurse said, "You look terrified". I simply took a deep breath, said "Well, I have cancer. So yes I am a bit terrified". Throughout the two hour appointment I went in and out of shock. At times I would handle things as though it is a was a business deal. I would process the information and ask specific questions. At other times it would occur to me that the nurse was telling me what will be happening to me. That those cords, drains and medication are going to be inside of me. Then the shock would wear off and my eyes filled with water.
Following the appointment the three of us went to lunch and shared a bottle of champagne. We talked more of my fears and processed more of what is my new reality. When the hostess poured our champagne into the glasses we told her how much we liked the glass. (unlike traditional flutes they were round). She proceeded to say "they were actually designed and inspired by Marie Antoinette breasts." I smiled and thought "well of course they are....." I cannot escape it even if I tried too.
Following our lunch we headed to Nordstrom so Candice could purchase me a Diptyque candle to keep with me and burn at all times. These candles can only be found at Nordstrom's and come with a heavy price tag, but once you smell them, you would understand (they are amazing). The three of us wandered the mall, I purchased a soft loose fitting shirt (anticipating this being my wardrobe for a month of two). We all agreed in spite of the afternoons appointment with the surgeon we had not been shopping with other girls at the mall since we were in high school and it was kind of fun.
Friday evening I had a special appointment (after hours) to see my hair dresser. I had been advised that cutting my hair prior to surgery would help make it easier. Easier to maintain and should I eventually undergo chemotherapy than it would make it less dramatic should I loose my hair. (shorter pieces falling out than longer pieces).
As a side thought, losing your hair is sort of a cultural right of passage for cancer patients. It as though your bald head tells people that "you must really" be sick. (Truthfully hair loss due to chemotherapy means that they were not able to get all of it out in surgery or they want to make sure it will not return). It is a strange sort of label we place on individuals or children who are sick with cancer. I have come to understand that hair loss or no hair loss. Cancer is cancer. It sucks. It hurts, it aches and it robs. I pray that Chemotherapy is not required for me..... but understand that if it is I will be prepared either way.
My hair dresser who has become so dear to me, shared champagne with me (Yes... you are seeing a trend, when trauma happens drink champagne it helps) while she cut a significant amount from my head. I cried. We discussed my new reality. Although it was an unplanned hair cut. It was less traumatic as I had previously thought it would be. (I kind of like it anyway :))
You can see my before and after pictures below, as well as me sneaking the bottle of champagne in.
As for the remainder of my weekend it was one of the most beautiful Colorado weekends in a long time. I rode my road bike for 30 miles on Saturday, watched football, and started nesting. I have what seems a lot of things to do before preparing to not be able to move or lift much. I have begun laying out my recovery library books (books I will try and read), as well as packing for Louisville. I fly out Thursday morning.
This has really happened quickly. I have already incurred close to $4,000 plus in medical bills, was given sheets of prescriptions (over 25 or so to be taken after my surgery).
On a positive note, The Ironman organization refunded my entry fee for the Boulder half ironman ($370.00) without hesitation which is such a relief. As well as I was able to get a credit for my flight to Guatemala for my best friends wedding I will be missing. The little details are coming together and a week from Wednesday I will be admitted for surgery.....
I plan to continue to write, share my journey and invite all of you to come to battle with me. Sunday I was running at Washington Park, stopped to take a deep breath and was so filled with joy. I am so humbled that God would choose me to have breast cancer. Yes it has been hard, and it is only going to get harder but the overflow of gifts that have come because of this diagnosis, sweet conversations with friends, transparency with others, tears about future all are because of cancer.
I have also learned the sweet surrender of not trying so hard anymore. I am giving up. Most of you that know me well, know that I like to be in control. I like to plan things out, make things happen, execute things well and this diagnosis has literally stopped me in my tracks. I feel broken, hurting and am going to trust that all things truly do work together for good and this small part of my story is going to mean good things to come.
This morning I met with the Fertility doctor. I will write more on this later. Much like me, I am sure you are wondering why...... (truthfully I am not sure I am ready to talk about this piece publicly yet).
Below are some pictures from this weekend, on my bike ride, my run and a picture I snapped at a bar while watching football. I would not recommend getting diagnosed with breast cancer (I would not recommend it ever really) but if you do especially not during the month of October. IT IS EVERYWHERE.
Really wish I could have asked the lady if I ordered the drink could it be free, and I could keep my donation for myself :)
As well a great picture of three great friends who honored me during the Breast Cancer walk in Tegucigalpa, Honduras this past weekend.
Thursday afternoon, with my roommate and Samantha (my cousins wife) I went to the plastic surgeon. We went through my reconstruction procedure and I signed all of my paperwork. The nurse explained in detail how I will have four drains put in to help drain out the fluid collecting due to surgery. Two drains for each breast. The drains will have to be emptied and the amount of fluid measured each day (multiple times). I will have the drains as long as fluid is collecting. Estimated (3 weeks). In addition to the drains I will be given what they call a pain pump. Until the Sunday following surgery, this will secrete numbing medication into my chest to help reduce the pain. Once it is emptied I will pull the cords out myself. I think it may have been at this time, that the nurse said, "You look terrified". I simply took a deep breath, said "Well, I have cancer. So yes I am a bit terrified". Throughout the two hour appointment I went in and out of shock. At times I would handle things as though it is a was a business deal. I would process the information and ask specific questions. At other times it would occur to me that the nurse was telling me what will be happening to me. That those cords, drains and medication are going to be inside of me. Then the shock would wear off and my eyes filled with water.
Following the appointment the three of us went to lunch and shared a bottle of champagne. We talked more of my fears and processed more of what is my new reality. When the hostess poured our champagne into the glasses we told her how much we liked the glass. (unlike traditional flutes they were round). She proceeded to say "they were actually designed and inspired by Marie Antoinette breasts." I smiled and thought "well of course they are....." I cannot escape it even if I tried too.
Following our lunch we headed to Nordstrom so Candice could purchase me a Diptyque candle to keep with me and burn at all times. These candles can only be found at Nordstrom's and come with a heavy price tag, but once you smell them, you would understand (they are amazing). The three of us wandered the mall, I purchased a soft loose fitting shirt (anticipating this being my wardrobe for a month of two). We all agreed in spite of the afternoons appointment with the surgeon we had not been shopping with other girls at the mall since we were in high school and it was kind of fun.
Friday evening I had a special appointment (after hours) to see my hair dresser. I had been advised that cutting my hair prior to surgery would help make it easier. Easier to maintain and should I eventually undergo chemotherapy than it would make it less dramatic should I loose my hair. (shorter pieces falling out than longer pieces).
As a side thought, losing your hair is sort of a cultural right of passage for cancer patients. It as though your bald head tells people that "you must really" be sick. (Truthfully hair loss due to chemotherapy means that they were not able to get all of it out in surgery or they want to make sure it will not return). It is a strange sort of label we place on individuals or children who are sick with cancer. I have come to understand that hair loss or no hair loss. Cancer is cancer. It sucks. It hurts, it aches and it robs. I pray that Chemotherapy is not required for me..... but understand that if it is I will be prepared either way.
My hair dresser who has become so dear to me, shared champagne with me (Yes... you are seeing a trend, when trauma happens drink champagne it helps) while she cut a significant amount from my head. I cried. We discussed my new reality. Although it was an unplanned hair cut. It was less traumatic as I had previously thought it would be. (I kind of like it anyway :))
You can see my before and after pictures below, as well as me sneaking the bottle of champagne in.
As for the remainder of my weekend it was one of the most beautiful Colorado weekends in a long time. I rode my road bike for 30 miles on Saturday, watched football, and started nesting. I have what seems a lot of things to do before preparing to not be able to move or lift much. I have begun laying out my recovery library books (books I will try and read), as well as packing for Louisville. I fly out Thursday morning.
This has really happened quickly. I have already incurred close to $4,000 plus in medical bills, was given sheets of prescriptions (over 25 or so to be taken after my surgery).
On a positive note, The Ironman organization refunded my entry fee for the Boulder half ironman ($370.00) without hesitation which is such a relief. As well as I was able to get a credit for my flight to Guatemala for my best friends wedding I will be missing. The little details are coming together and a week from Wednesday I will be admitted for surgery.....
I plan to continue to write, share my journey and invite all of you to come to battle with me. Sunday I was running at Washington Park, stopped to take a deep breath and was so filled with joy. I am so humbled that God would choose me to have breast cancer. Yes it has been hard, and it is only going to get harder but the overflow of gifts that have come because of this diagnosis, sweet conversations with friends, transparency with others, tears about future all are because of cancer.
I have also learned the sweet surrender of not trying so hard anymore. I am giving up. Most of you that know me well, know that I like to be in control. I like to plan things out, make things happen, execute things well and this diagnosis has literally stopped me in my tracks. I feel broken, hurting and am going to trust that all things truly do work together for good and this small part of my story is going to mean good things to come.
This morning I met with the Fertility doctor. I will write more on this later. Much like me, I am sure you are wondering why...... (truthfully I am not sure I am ready to talk about this piece publicly yet).
Below are some pictures from this weekend, on my bike ride, my run and a picture I snapped at a bar while watching football. I would not recommend getting diagnosed with breast cancer (I would not recommend it ever really) but if you do especially not during the month of October. IT IS EVERYWHERE.
Really wish I could have asked the lady if I ordered the drink could it be free, and I could keep my donation for myself :)
As well a great picture of three great friends who honored me during the Breast Cancer walk in Tegucigalpa, Honduras this past weekend.
Thursday, October 23, 2014
Surgery 101.
So many details...
Maybe sometimes sharing too much is a bad thing but in this case there have been a lot of questions regarding my surgery, post surgery procedure, reconstruction etc. So to try and fill in some gaps I am going to try and explain some things below. This as well has become a therapeutic way for me to share:
November 5, 2014, two weeks from yesterday I will be admitted to the hospital around 11:30 am. I will first undergo an injection of fluid (glowing fluid of some kind). This fluid will then we placed into my body so my surgeon can see which lymph nodes light up. This will help her determine which lymph nodes she will remove during surgery.
My surgery will begin at 1:30 pm. My breast surgeon will first remove all breast tissue, left side first then right side. On the left side only, she will complete the sentinel lymph node biopsy. (The removal of the lymph nodes to see if the cancer is found in them). The lymph nodes they remove are underneath my left armpit. Should cancer be detected in them..... she will remove an even larger amount of lymph nodes for further testing. This could mean two things...... that the cancer is in my left breast and in just my lymph nodes or it could potentially mean it has metastasized (moved to other parts of my body). Based on my pathology report they do not suspect this to be the case however it is still a possibility. So we are hoping the cancer is restricted to the tumor on my left breast and my lymph nodes are clear :)
Once she removes all breast tissue of one side, the plastic surgeon will come in and immediately begin constructing my new breasts. I will be doing this through tissue expanders. The expanders are to hold the place for the implant. Over a period of weeks, I will go in while they (insert saline into the expander) make the space for my future implant. The actual insertion of my implant will not take place until a later date.
Unlike a traditional breast augmentation I lose close to all (minus the 1% they cannot guarantee) breast tissue. My breasts will be built from nothing with just an implant. In my case specifically my tumor is too close to my left nipple so I am not able to keep it. At a later date the breast surgeon will reconstruct nipples and complete with tattoo of the pigmentation. The decision to not keep my neeplra is part of the great that should by keeping the nipple, I am keeping part of my breast tissue so breast cancer could come back that way.
Surgery all together should take place in around 3-4 hours (I wrote this originally and it is more like 6 hours) . Once they know whether my lymph nodes are clear or not, they will go out of surgery and inform my family.
This would be huge :) So we are praying hard for this.
I am expected to be out of work 4-6 weeks. Depending on my recovery, my healing and whether or not the cancer is found someplace else. My time away from work is very dependent on my surgery so I have tried not to speculate what that will look like but otherwise be present in the now....... like at this moment eating the homemade apple pie my roommate made last night and grateful for long nights sleep.
As for today, I am heading to my pre-surgery appointment at the plastic surgeon in an hour. My roommate and dear friend Candice, along with my cousins wife (practically my cousin) Samantha are coming along. I have made a vow that I will not attend one appointment alone. I have learned that I need people in this and having people sit in a waiting room with me is just a small part of that.
Never mind all this nonsense though..... Next Thursday, I land in Louisville. I get to have one last weekend with family and friends. I cannot wait :) I fly back to Denver on Sunday before my surgery and my parents will be joining me in Colorado on Monday. Time, although at times I wish would move quickly so I can get this process started, is also so dear to me these days. I don't mind if it doesn't slow down. I am soaking every last bit of life out of the changing season and warm weather.......I have reunited and connected with so many of you in the past few weeks and for that I say "thank you cancer". Although you (cancer) have broken my heart and instilled fear in my day, you also have been the giver of so many gifts because of this diagnosis and for that I cannot say enough thanks.
Warmest to all of you, sending love and prayers my way. The cards and gifts are so appreciated as I have them displayed in my room. I know I am not alone and as a friend who has become so dear said to me, "we" are going to do this. Because all of you are on my team..... and I am grateful.
Sending so much love to you from sunny Denver and a Broncos victory tonight!
Maybe sometimes sharing too much is a bad thing but in this case there have been a lot of questions regarding my surgery, post surgery procedure, reconstruction etc. So to try and fill in some gaps I am going to try and explain some things below. This as well has become a therapeutic way for me to share:
November 5, 2014, two weeks from yesterday I will be admitted to the hospital around 11:30 am. I will first undergo an injection of fluid (glowing fluid of some kind). This fluid will then we placed into my body so my surgeon can see which lymph nodes light up. This will help her determine which lymph nodes she will remove during surgery.
My surgery will begin at 1:30 pm. My breast surgeon will first remove all breast tissue, left side first then right side. On the left side only, she will complete the sentinel lymph node biopsy. (The removal of the lymph nodes to see if the cancer is found in them). The lymph nodes they remove are underneath my left armpit. Should cancer be detected in them..... she will remove an even larger amount of lymph nodes for further testing. This could mean two things...... that the cancer is in my left breast and in just my lymph nodes or it could potentially mean it has metastasized (moved to other parts of my body). Based on my pathology report they do not suspect this to be the case however it is still a possibility. So we are hoping the cancer is restricted to the tumor on my left breast and my lymph nodes are clear :)
Once she removes all breast tissue of one side, the plastic surgeon will come in and immediately begin constructing my new breasts. I will be doing this through tissue expanders. The expanders are to hold the place for the implant. Over a period of weeks, I will go in while they (insert saline into the expander) make the space for my future implant. The actual insertion of my implant will not take place until a later date.
Unlike a traditional breast augmentation I lose close to all (minus the 1% they cannot guarantee) breast tissue. My breasts will be built from nothing with just an implant. In my case specifically my tumor is too close to my left nipple so I am not able to keep it. At a later date the breast surgeon will reconstruct nipples and complete with tattoo of the pigmentation. The decision to not keep my neeplra is part of the great that should by keeping the nipple, I am keeping part of my breast tissue so breast cancer could come back that way.
Surgery all together should take place in around 3-4 hours (I wrote this originally and it is more like 6 hours) . Once they know whether my lymph nodes are clear or not, they will go out of surgery and inform my family.
This would be huge :) So we are praying hard for this.
I am expected to be out of work 4-6 weeks. Depending on my recovery, my healing and whether or not the cancer is found someplace else. My time away from work is very dependent on my surgery so I have tried not to speculate what that will look like but otherwise be present in the now....... like at this moment eating the homemade apple pie my roommate made last night and grateful for long nights sleep.
As for today, I am heading to my pre-surgery appointment at the plastic surgeon in an hour. My roommate and dear friend Candice, along with my cousins wife (practically my cousin) Samantha are coming along. I have made a vow that I will not attend one appointment alone. I have learned that I need people in this and having people sit in a waiting room with me is just a small part of that.
Never mind all this nonsense though..... Next Thursday, I land in Louisville. I get to have one last weekend with family and friends. I cannot wait :) I fly back to Denver on Sunday before my surgery and my parents will be joining me in Colorado on Monday. Time, although at times I wish would move quickly so I can get this process started, is also so dear to me these days. I don't mind if it doesn't slow down. I am soaking every last bit of life out of the changing season and warm weather.......I have reunited and connected with so many of you in the past few weeks and for that I say "thank you cancer". Although you (cancer) have broken my heart and instilled fear in my day, you also have been the giver of so many gifts because of this diagnosis and for that I cannot say enough thanks.
Warmest to all of you, sending love and prayers my way. The cards and gifts are so appreciated as I have them displayed in my room. I know I am not alone and as a friend who has become so dear said to me, "we" are going to do this. Because all of you are on my team..... and I am grateful.
Sending so much love to you from sunny Denver and a Broncos victory tonight!
Mt. Evans on my morning bike ride to work.
Sunday, October 19, 2014
I would take cancer
Cancer is an amazing thing. It not only the power to take your life from you, but it can prohibit you from living in the present, while it inhabits your very being. One of the most common questions people want to ask me is "What stage are you?" "It's early isn't it?" I often smile and say, "Of Course, I mean how late can it be? I am only 26 years old?". I have learned my positive enthusiasm makes others less scared. For people viewing from the outside, they often want to take your diagnosis, simplify it down to a set of bullet points so it is manageable and more comprehensible. Becuase if people can simply do that, then cancer isn't that bad. They have a peace of mind, tell me I will be fine and carry on with their day to day.
I wish it were that easy but you see it isn't. For me it isn't at all.
Cancer is invading my every being. Cancer came into my life without permission and now has the ability to destroy everything around me. It can prohibit me from finding joy and laughing. Prohibit me from the life I have been granted.
But I refuse to give it that power.
Wednesday evening I walked into my house from work and our house was full of guests. My roommate was hosting friends for dinner. As I walked into the house the guests were all laughing and drinking wine. With my head held down and fighting the tears that seemed to be creeping up, I made a beeline to my room. I shut the door to my bedroom and nearly collapsed in my tears. Dropping my bag, tears streamed from my eyes like never before. In that moment I laid on my floor and crawled in close. I held my knees to my chest and weeped. Weeped in the fear of the future. Of this November 5 date looming in the future and the unknowns. I cried in envy. Envy of everyone else who gets to keep going, without what seems to be a care in the world and I am battling cancer. In the hour or so that I laid on my floor crying I told myself "I don't know how to do this."
Unfortunately that is where I am at right now. In the midst of unknown. Until November 5 the full scope of my cancer diagnosis is unclear. I am at this point carrying on with life as I always had. minus the fact that every ten seconds I feel a sharp pain in my chest and I am reminded that I have breast cancer.
On Thursday two different individuals in my life shared with me the passage of, Luke 22. The story where Jesus wept, pleading with God that he would take away the obstacle before him. But Jesus then said "but not my will but yours be done."
I would never wish cancer on anyone. This new reality of cancer books, and doctors appointments and pathology reports is something I never imagined becoming an expert in. But this is my reality. I have breast cancer and I cannot change that. I am prepared to see what God will do with this and I sure as hell want to be prepared to fight.
Although I am deeply sad, and often collapse in tears, I would take a cancer diagnosis over and over again to have the gift that has been the past few weeks anyday. The two weeks with my parents are something I will treasure for the rest of my life.
Wednesday after I had been diagnosed I fell asleep next to my dad while he and my mom reasearched plastic surgeons. I was safe and in that moment I was at peace. I have shared countless moments like this one. I otherwise would have never had these moments and for that I say thank you.
Saturday morning I gathered with five of my closest girlfriends so they could pray over me. For an hour we sat, shared and the girls lifted me up. Unable to pray before my tears began to fall, they prayed when I could not.
I am not angry at God. I am scared and I am sad. But in the midst of it alll, I don't want to miss what he is going to do in all of this. I don't want to one day be in remission and think to myself wow you missed it. Didnt you see what he was doing the whole time?
So my prayer today is not for my cancer to go away like magic (although it would be nice). But rather to soak in this journey. To breathe in the sweet moments with others. To be grateful for people who show up with no previous close relationship and want to remind me of truths when I cannot see them myself. I am grateful for people who declare that God is good and that they believe God is doing something good in all of this. I want to remain grateful for friends who take time on their weekend to lay a hand and wipe my tears.
Again I cannot say enough thanks for all of you who have reached out, who are reading, who are praying and who care.
As a young female cancer unfortunately can be a much bigger battle. Things I have never before had to think about, fertility, breast feeding, premature menopause etc. So while these still remain unknowns and could never become "issues" praying for my fears in this are appreciated.
Warmest regards to all of you. And I am off to cheer on the Broncos :)
I wish it were that easy but you see it isn't. For me it isn't at all.
Cancer is invading my every being. Cancer came into my life without permission and now has the ability to destroy everything around me. It can prohibit me from finding joy and laughing. Prohibit me from the life I have been granted.
But I refuse to give it that power.
Wednesday evening I walked into my house from work and our house was full of guests. My roommate was hosting friends for dinner. As I walked into the house the guests were all laughing and drinking wine. With my head held down and fighting the tears that seemed to be creeping up, I made a beeline to my room. I shut the door to my bedroom and nearly collapsed in my tears. Dropping my bag, tears streamed from my eyes like never before. In that moment I laid on my floor and crawled in close. I held my knees to my chest and weeped. Weeped in the fear of the future. Of this November 5 date looming in the future and the unknowns. I cried in envy. Envy of everyone else who gets to keep going, without what seems to be a care in the world and I am battling cancer. In the hour or so that I laid on my floor crying I told myself "I don't know how to do this."
Unfortunately that is where I am at right now. In the midst of unknown. Until November 5 the full scope of my cancer diagnosis is unclear. I am at this point carrying on with life as I always had. minus the fact that every ten seconds I feel a sharp pain in my chest and I am reminded that I have breast cancer.
On Thursday two different individuals in my life shared with me the passage of, Luke 22. The story where Jesus wept, pleading with God that he would take away the obstacle before him. But Jesus then said "but not my will but yours be done."
I would never wish cancer on anyone. This new reality of cancer books, and doctors appointments and pathology reports is something I never imagined becoming an expert in. But this is my reality. I have breast cancer and I cannot change that. I am prepared to see what God will do with this and I sure as hell want to be prepared to fight.
Although I am deeply sad, and often collapse in tears, I would take a cancer diagnosis over and over again to have the gift that has been the past few weeks anyday. The two weeks with my parents are something I will treasure for the rest of my life.
Wednesday after I had been diagnosed I fell asleep next to my dad while he and my mom reasearched plastic surgeons. I was safe and in that moment I was at peace. I have shared countless moments like this one. I otherwise would have never had these moments and for that I say thank you.
Saturday morning I gathered with five of my closest girlfriends so they could pray over me. For an hour we sat, shared and the girls lifted me up. Unable to pray before my tears began to fall, they prayed when I could not.
I am not angry at God. I am scared and I am sad. But in the midst of it alll, I don't want to miss what he is going to do in all of this. I don't want to one day be in remission and think to myself wow you missed it. Didnt you see what he was doing the whole time?
So my prayer today is not for my cancer to go away like magic (although it would be nice). But rather to soak in this journey. To breathe in the sweet moments with others. To be grateful for people who show up with no previous close relationship and want to remind me of truths when I cannot see them myself. I am grateful for people who declare that God is good and that they believe God is doing something good in all of this. I want to remain grateful for friends who take time on their weekend to lay a hand and wipe my tears.
Again I cannot say enough thanks for all of you who have reached out, who are reading, who are praying and who care.
As a young female cancer unfortunately can be a much bigger battle. Things I have never before had to think about, fertility, breast feeding, premature menopause etc. So while these still remain unknowns and could never become "issues" praying for my fears in this are appreciated.
Warmest regards to all of you. And I am off to cheer on the Broncos :)
"Because if I could see what he could see, then I would make the same choice"
Wednesday, October 15, 2014
"I don't think I could do that."
In the waiting room before I went back for my MRI, I stared at an older woman waiting in a chair across from me. With a scarf covering her bare skinned scalp and olive skin, it was obvious she had cancer. I thought to myself ...How does she do it? How does she show up and wait, time and time again? Waiting hoping that this time the news the doctors had would be different? It must be hard to visit a doctor all the time. To be sick.
I looked at my mom and said, "I don't think I could do that."
My mom, aware of the thoughts in my head without even having to say them, agreed with me. Shaking her head, she said, "It is hard". For those people. For those people, who have cancer. It is very hard.
Soon after my name was called, I went back for my MRI. When I was finished I came back to the waiting room and noticed that the older woman was gone.
I smiled at my mom, told her that the MRI went well and we walked out of the hospital quickly discussing where we would have dinner that evening.
Never ever did I leave the office that day thinking I would be "one of those people, who have cancer".
Two weeks ago yesterday I became a cancer patient.
Today I am trying to find out how I am supposed to do this.
How do I show up to work? Go to the doctor for what already feels like the tenth time? How do I keep going, when it seems like the world around me has stopped. Like someone robbed me of the life I once had.
Last evening I went on a run (while I still can) at Washington Park with one of my best friends from college and shared my frustration. Frustrated that it seems everyone around me gets to keep going on with life...
Friends planning trips, buying new houses, getting married.....
As for me, I am preparing to battle breast cancer.
My heart aches.... like I never ever knew that it could.
Yesterday I cancelled my end of November flight to Guatemala. My high school best friend, Stephanie Riley is getting married there. After a year of anticipation, her wedding is November 29, 2014 and I don't get to be there.
I came home last night to my first of many large medical bills and several medical bill estimates. This new reality is lonely, heart breaking, sad and scary.
As you continue on with your day to day, may you find joy and gratitude in even the minimal and say an extra prayer for me. Your messages and virtual hugs are received with the utmost gratitude. The gifts and cards adorning my house make me smile, so thank you.
I am honored to announce I will be an aunt next year. An aunt and a breast cancer survivor even if I don't know how to do either of them.
Congratulations to my sister and Josh. I love you both and your little bean on the way.
Below is a picture of Amy Patwa, my friend I spoke of and a woman who I have admired so much. Two years ago she lost her battle with breast cancer. She like me was BRCA 2 positive. She radiated joy through the end and made sure everyone knew that she was not angry. But she trusted who God was in it all. Sure hoping she could share some of that with me today.
I looked at my mom and said, "I don't think I could do that."
My mom, aware of the thoughts in my head without even having to say them, agreed with me. Shaking her head, she said, "It is hard". For those people. For those people, who have cancer. It is very hard.
Soon after my name was called, I went back for my MRI. When I was finished I came back to the waiting room and noticed that the older woman was gone.
I smiled at my mom, told her that the MRI went well and we walked out of the hospital quickly discussing where we would have dinner that evening.
Never ever did I leave the office that day thinking I would be "one of those people, who have cancer".
Two weeks ago yesterday I became a cancer patient.
Today I am trying to find out how I am supposed to do this.
How do I show up to work? Go to the doctor for what already feels like the tenth time? How do I keep going, when it seems like the world around me has stopped. Like someone robbed me of the life I once had.
Last evening I went on a run (while I still can) at Washington Park with one of my best friends from college and shared my frustration. Frustrated that it seems everyone around me gets to keep going on with life...
Friends planning trips, buying new houses, getting married.....
As for me, I am preparing to battle breast cancer.
My heart aches.... like I never ever knew that it could.
Yesterday I cancelled my end of November flight to Guatemala. My high school best friend, Stephanie Riley is getting married there. After a year of anticipation, her wedding is November 29, 2014 and I don't get to be there.
I came home last night to my first of many large medical bills and several medical bill estimates. This new reality is lonely, heart breaking, sad and scary.
As you continue on with your day to day, may you find joy and gratitude in even the minimal and say an extra prayer for me. Your messages and virtual hugs are received with the utmost gratitude. The gifts and cards adorning my house make me smile, so thank you.
I am honored to announce I will be an aunt next year. An aunt and a breast cancer survivor even if I don't know how to do either of them.
Congratulations to my sister and Josh. I love you both and your little bean on the way.
Below is a picture of Amy Patwa, my friend I spoke of and a woman who I have admired so much. Two years ago she lost her battle with breast cancer. She like me was BRCA 2 positive. She radiated joy through the end and made sure everyone knew that she was not angry. But she trusted who God was in it all. Sure hoping she could share some of that with me today.
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